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Daily Routines and Checklist
Signs and symptoms of infantile-onset Pompe disease checklist
Signs and symptoms of late-onset Pompe disease checklist
Patient Disease Awareness Brochure
Genetic and Rare Diseases Information Center (GARD)
Muscular Dystrophy Association
National Alliance for Caregiving
National Organization for Rare Disorders, Inc. (NORD)
Center for Parent Information and Resources
Family Caregiver Alliance
National Caregivers Library
National Family Caregivers Association
Parent to Parent (P2P) USA
Well Spouse Association
The Center for Information and Study on Clinical Research Participation
Information About Genetic Counselors
Genetic Testing Registry
Acid Maltase Deficiency Association
Association for Glycogen Storage Disease
International Pompe Association
United Pompe Foundation
Genetics of Pompe
Pompe disease is an inherited disorder. Learn about the role that genetics plays in Pompe disease.
Call +1(800) 745-4447
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NOT SURE IT’S POMPE?
NOT SURE IT'S POMPE?