Communicating with your healthcare team about your illness helps to ensure that
You are getting appropriate and up-to-date care
You are an active participant in your care
You can work together with your healthcare team to make decisions that are right for you
Healthcare providers typically have busy schedules, so it is always a good idea to come prepared for each appointment. Take notes during the appointment and after, you should ensure that you follow instructions given to you. Call your healthcare provider if you are unclear about the instructions and if you have follow-up questions, and create a list for your next appointment.
Why is an open and straightforward relationship with your healthcare team important?
Sanofi Genzyme offers a wide range of Support Services to people with Pompe disease and their families.
Make the most of visits with the healthcare coordinator and team by going to an appointment prepared, which may include writing information down and taking some things with you.