Late-onset Pompe Disease

Do You Suspect Late-onset Pompe Disease?

Late-onset Pompe disease (LOPD) differs from the infantile-onset form (IOPD) in when symptoms occur, how severe they are, and the progression of the disease.

SIGNS AND SYMPTOMS

Signs and symptoms usually become obvious in adulthood but can occur as early as infancy and may look very different from person to person.

DIAGNOSTIC JOURNEY

Learn more about the Diagnostic Journey of LOPD and visit Testing Options to learn how it is diagnosed.

TESTING OPTIONS

Have You Been Diagnosed With LOPD?

LIVING WITH POMPE DISEASE

Late-onset Pompe disease is a serious diagnosis, and you probably have lots of questions. In addition to talking to your doctor, visit Living with Pompe Disease to read more about other patients and their experience with LOPD and to learn about a disease registry.

IMPACT OF POMPE DISEASE

Visit Impact of Pompe Disease to read about what you can expect as the disease progresses and how it might impact you and your family.

STRATEGIES FOR CARE AND SUPPORT

Take on Pompe disease with Strategies for Care and Support.

TALKING WITH YOUR FAMILY

Talking with Your Family about Pompe disease and the role of genetics.

SPEAKING WITH YOUR DOCTOR

Considerations for Speaking with Your Doctor