Communicating with your baby's healthcare team helps to ensure
Appropriate and up-to-date care
Active participation in care
Working together with the healthcare team to make the right decisions
Healthcare providers typically have busy schedules, so it is always a good idea to come prepared for each appointment. Take notes during the appointment and after; you should ensure that you follow instructions given to you. Call the healthcare provider if you are unclear about the instructions, and if you have follow-up questions, and create a list for your next appointment.
Why is an open and straightforward relationship with the healthcare team important?
Sanofi Genzyme offers a wide range of Support Services to people with Pompe disease and their families.
Make the most of visits with the healthcare coordinator and team by going to an appointment prepared, which may include writing information down and taking some things with you: