Tools and resources for you, the healthcare provider, to expand your knowledge and understanding of Pompe disease.
National Alliance for Caregiving
National Organization for Rare Disorders, Inc. (NORD)
Office of Rare Diseases at the National Institutes of Health
Center for Parent Information and Resources
National Family Caregivers Association
The Center for Information and Study on Clinical Research Participation
National Society of Genetic Counselors
Acid Maltase Deficiency Association
Association for Glycogen Storage Disease
International Pompe Association