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Pompe disease is a rare, complex disorder. There are several practitioners and clinics throughout the country who are experienced in treating rare genetic disorders, including Pompe disease.
The Muscular Dystrophy Association (MDA) has 235 hospital-affiliated clinics in the United States that offer quality medical care available from doctors, nurses and therapists experienced in dealing with neuromuscular diseases. These facilities may help patients manage the muscular aspect of Pompe disease.
To find a Muscular Dystrophy Association's clinic near you, visit the Muscular Dystrophy Association.
