Additional Information

Case Management Resource Guide

http://www.cmrg.com
A free searchable database of over 100,000 specialty health care services, facilities, businesses and organizations (as of September 21, 2005).

Clinical Trials.gov

http://www.clinicaltrials.gov
Information about many upcoming trials that are actively recruiting patient volunteers can be found at the US government's site on clinical trials.

Food and Drug Administration (FDA)

http://www.fda.gov
The Food and Drug Administration (FDA) site is a clearinghouse of information including new product approvals and safety alerts.

FDA's Center for Drug Evaluation and Research (CDER)

http://www.fda.gov/cder
The mission of FDA's Center for Drug Evaluation and Research (CDER) is to assure that safe and effective drugs are available to the American people. CDER also publishes an online guide entitled "From Test Tube to Patient: New Drug Development in the US" which describes the different steps in the drug development process.

National Center of Biotechnology Information

http://www.ncbi.nlm.nih.gov
National Center of Biotechnology Information is a searchable website that includes information on genetic diseases.

Office of Rare Diseases (ORD)

http://rarediseases.info.nih.gov

The Office of Rare Diseases (ORD) provides information on more than 6,000 rare diseases (as of September 8, 2005), including current research, publications from scientific and medical journals, completed research, and ongoing studies.