Additional Information

Case Management Resource Guide

A free searchable database of over 100,000 specialty health care services, facilities, businesses and organizations (as of September 21, 2005).
http://www.cmrg.com

Clinical Trials.gov

Information about many upcoming trials that are actively recruiting patient volunteers can be found at the US government's site on clinical trials.
http://www.clinicaltrials.gov

Food and Drug Administration (FDA)

The Food and Drug Administration (FDA) site is a clearinghouse of information including new product approvals and safety alerts.
http://www.fda.gov

FDA's Center for Drug Evaluation and Research (CDER)

The mission of FDA's Center for Drug Evaluation and Research (CDER) is to assure that safe and effective drugs are available to the American people. CDER also publishes an online guide entitled "From Test Tube to Patient: New Drug Development in the US" which describes the different steps in the drug development process.
http://www.fda.gov/cder

National Center of Biotechnology Information

National Center of Biotechnology Information is a searchable website that includes information on genetic diseases.
http://www.ncbi.nlm.nih.gov

Office of Rare Diseases (ORD)

The Office of Rare Diseases (ORD) provides information on more than 6,000 rare diseases (as of September 8, 2005), including current research, publications from scientific and medical journals, completed research, and ongoing studies.
http://rarediseases.info.nih.gov

Genzyme Support Services

Learn how Genzyme can help people affected by Pompe disease with medical information, advocacy, treatment support, and more.

Learn More

Organizations & Websites

Get lists of online resources and worldwide organizations and associations that offer information, support, and more for people living with Pompe disease.

Learn More