Organizations

Click on the links below to learn more about patient organizations and other associations that offer information, support, advocacy, and the latest research news for people living with Pompe disease. The information may be of assistance to the individual affected, their families, and caregivers in the US and around the world.

Patient Organizations 

Advocacy & Support Services

Counseling Services

Additional Information

Genzyme Support Services

Learn how Genzyme can help people affected by Pompe disease with medical information, advocacy, treatment support, and more.

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Organizations & Websites

Get lists of online resources and worldwide organizations and associations that offer information, support, and more for people living with Pompe disease.

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