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Resources & Support

The following support services and resources can provide assistance and information about Pompe disease:

• Genzyme Support Services  
  We provide information and education, patient advocacy, and treatment support
• The Pompe Registry  
  The Pompe Registry helps improve understanding of the disease by tracking information about patients and their experiences
• Online Resources
  There are a variety of websites, patient organizations, and other groups that can provide information and support
• Request Materials  
  Educational materials are available upon request
• Glossary   
  For those learning about Pompe disease, our online glossary offers helpful definitions of many related terms

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